Health Equity = Tribal Access to Tribal Health Data

A recent report noting the yet again greater reduced life expectancy of Native Americans since the arrival of COVID has highlighted the health inequities between those communities and the United States’ population at large. Exacerbating the disparities is the inability of Indian tribes (and Tribal Epidemiology Centers) to access the health data of its members, to which they are legally entitled, in order to target their public health interventions. During this session, Chris Alibrandi O’Connor from the Network for Public Health Law and Meghan Curry O’Connell and Charles Abourezk from the Great Plains Tribal Leaders’ Health Board explain several factors inhibiting governments’ data sharing with Indian tribes, detail the legal basis for a tribe’s rights to the health data of its members, and dispel the myth that HIPAA prohibits the sharing of such data with tribes. Participants heard why such data access matters and how our public health data sharing system can change to address that inequity.

Previous

Healthy Communities NC: Free and Public Resource for Social Determinants of Health

Next

Getting from the Data-Sharing Land of No onto “Pathways to Yes”